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LET'S SHAKE STIGMA
The history of this female health blog and VAVA Womb
This blog was born as VAVA Womb, a stigma shaking gynae health and self love brand. We are now dedicating this space to benefit those with MRKH syndrome, our stories, advice and awareness. MRKH spans subjects of body positivity, infertility, mental health, hormone health, sexual health and self esteem - so we know our voices could benefit many people, no matter their experiences. We are a fierce community here, ready to be heard!
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Why We're Broadening Our Advocacy
One of the things that has become increasingly clear through our work in the MRKH community is that, whilst our diagnoses may be different, many of our experiences are not. When people think about conditions like MRKH, CAIS, Turner syndrome, Primary Ovarian Insufficiency (POI), infertility and vaginismus, they often focus on the medical facts. But the reality of living with these conditions is about far more than a diagnosis on a piece of paper. For MRKH syndrome, we run a UK
The MRKH App
2 days ago3 min read
The UK MRKH Care Gap
We are here to fight for equal, accessible and equitable healthcare for every MRKHer in the UK. Join our advocacy group and work here: https://www.mindovermrkh.org/mrkh-change MRKH care in the NHS is often described in two very different ways depending on where you sit in the system. For some patients, care can be timely, specialist and well coordinated. For others, access to information, referral routes and psychological and psychosexual support can be unclear or inconsisten
MRKH Change - Ellamae Fullalove
May 215 min read
The MRKH Community Magazine - Bringing Our Story To Life
Have you heard about our zine project for MRKH syndrome? A printed keepsake, created by and for MRKHers. This magazine began with a simple but important idea…what would it look like to hold our stories in our hands? Not just as posts that disappear on a screen, but as something physical, something lasting, something we can return to. Issue 1 of the MRKH magazine will be a collection of artwork from MRKHers alongside creative writing, articles and contributions from artists an
The MRKH App
May 112 min read
Introducing The Rarely Project - growing and expanding Mind Over MRKH into something special.
Introducing The Rarely Project We want to share something important with you and bring you into the next chapter of our work together. For many of you, this space began through MRKH. Through shared experiences, conversations, meet ups, creative workshops, writing groups, WhatsApp chats and moments of support that did not exist before. What started small has grown into something real and meaningful. That will not change. We are still here for MRKH. We are still committed to Mi
The MRKH App
May 93 min read
MRKH - The invisible impact on body image
Founder, Ellamae Fullalove, reflects on beauty standards and MRKH syndrome. MRKH may be invisible but it still contributed negatively how I see myself I have spent years noticing every detail that felt “wrong” to me. A bigger nose, being taller than most girls, feet I have always thought looked odd, a hairline I felt I had to hide. These things built up over time until they shaped how I saw myself. I convinced myself I was ugly, not just a little different but too different.
The MRKH App
May 55 min read
International Women's Day 2026
International Women’s Day 2026: Give to Gain Where can we begin!? We would firstly love to hear from you this women's day, your voice ALWAYS matters. Upload a voice note here to take part! What does being a woman mean to you? Try it on a laptop or computer if mobile doesn't work. We will be releasing our community episode on "Women's Day" all about Womanhood by 1st April! We are also collecting literature, arts or poetry submissions here for the FIRST issue of the MRKH maga
The MRKH App
Mar 84 min read
International MRKH Day - The Women in History who have shaped care, beyond the four male physicians who discovered MRKH.
It’s International MRKH Day which is Carl Rokitanksy’s birthday ! And every year that’s usually what seems to be spoken about. So we’re delving deeper! International MRKH Day is dominated by the male physicians who discovered it. Let’s delve into the history beyond the clinical discovery… including the female scientists who have made an impact. MRKH is named after the authors of the four original descriptions published over a 130 year period by German anatomist August Fran
The MRKH App
Feb 195 min read
MRKH One - 24 Hour Global Webinar for International MRKH Day is happening this weekend!
We are thrilled to announce that we are co-curators for the upcoming 2026 event, a gathering that promises to bring together a diverse range of organisations committed to making a meaningful impact for MRKH syndrome. This event, MRKH One 2026 , is more than just a date on the calendar- it is an MRKH movement! Mind Over MRKH will be hosting three sessions of our own and we have been proudly working with the global community to bring this incredible programme together, with hug
The MRKH App
Feb 192 min read
Why do MRKHers want a mobile app? Here's our weekly message board!
Janelle Farabaugh So that no one ever has to feel alone in this experience ever again! Personally, I’ve never met anyone else with MRKH in daily life. However, through MRKH Connect I was finally able to connect with others virtually. I hope this app will lead to more connection. Love, Janelle @janelleinboston on IG and TikTok Abi R I’d love something like this, despite following Facebook pages & instagrams, I’ve struggled to find a way to include myself in a community that i
The MRKH App
Dec 15, 20251 min read
Our Own MRKH App - At What Cost? And Why?
Community is Everything It can feel like we are everywhere but still not quite together. On Facebook we can join seperate groups but we...
The MRKH App
Aug 12, 20253 min read
Giulia- Italian MRKH Advocate shares her story & research project for MRKH
Hello everyone! My name is Giulia, I am an Italian Roki girl and I dream of being a midwife when I grow up. I am currently finishing my...
The MRKH App
Jul 8, 20252 min read
Finding ourselves again - MRKH
MRKH and self acceptance - an app that blends community with identity
The MRKH App
Jun 19, 20253 min read
Global Wellness Day - MRKH edition
Ellamae Fullalove - Global wellness day and the MRKH app
The MRKH App
Jun 14, 20255 min read
More Body Literacy Please. Because literally, it's called a Vulva.
Body literacy is NOT SHAMEFUL and here’s why we need more of it Let’s talk about bodies. Not in the vague wellness influencer way, but in...
The MRKH App
Jun 13, 20254 min read
Without a period, how will I know my cycle!?
How do I track my cycles with MRKH? MRKH menstrual cycle and why we're building a mood tracker tailored to MRKHers!
The MRKH App
Jun 12, 20253 min read
MRKH - Beyond The Scroll
We live in a world where we’re constantly online and always within reach, yet so many of us still feel unseen, especially people...
The MRKH App
Jun 12, 20253 min read
Why our Innovative MRKH App is Essential
The MRKH Community is vibrant, full of stories and support but we are scattered, disjointed and not working as a global eco-system (as...
The MRKH App
Jun 10, 20253 min read
Loneliness Awareness Week - Bring on the MRKH App!
This Loneliness Awareness Week, let’s remind each other: You might feel lonely sometimes but you don’t have to do it alone. The MRKH App...
The MRKH App
Jun 9, 20253 min read
We Move - Workshop in London 28/08
Let’s move through body shame. Find out more and get tickets here Move through body shame with this intimate talk + workshop, the first...
The MRKH App
Aug 13, 20242 min read
The NHS are looking to roll out vaginal HPV swabs (not cervical smears!) - it’s a game changer and could save many lives
I come bearing news! The NHS is looking to roll out a DIY vaginal HPV screening kits after a trial found it could boost uptake by almost...
The MRKH App
Jul 18, 20244 min read
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