Why do MRKHers want a mobile app? Here's our weekly message board!

So that no one ever has to feel alone in this experience ever again! Personally, I’ve never met anyone else with MRKH in daily life. However, through MRKH Connect I was finally able to connect with others virtually. I hope this app will lead to more connection.

Love, Janelle

I’d love something like this, despite following Facebook pages & instagrams, I’ve struggled to find a way to include myself in a community that is desperately needed for those navigating MRKH. I think it would be something my 16 year old self would have also massively appreciated because as much as your parents and friends want to support you they don’t have the knowledge and insight that fellow MRKH’ers do. I felt so alone and isolated in my early diagnosis and having a ready made support system that doctors and professionals could recommend to me would have been amazing!

When I was diagnosed at 17, I felt alone and depressed but it felt like an issue for my future self. Now, at 27, I still feel alone and depressed. Especially now that I am at the age when many of my friends are having children and it seems babies are being shoved in my face from every direction! The pressure to attend baby showers, birthday, and then to have your own. I need a community that understands